I’m the principal editor of a book told from the perspective of consumers, patients, and caregivers about their health journeys and how healthcare could be different if truly designed from the perspective of patients and caregivers. It is called Participatory Healthcare: A Person-Centered Approach to Healthcare Transformation, published August 2016 by CRC Press. You can purchase the book here. Use the code HIM25 to receive free shipping and a 25% discount. You can also purchase the book from Amazon in paperback or Kindle formats here. Please leave a review at Amazon or CRC Press.
I authored the chapter on “Personal Health Engagement” in Medical Informatics, an Executive Primer, Third Edition, published by HIMSS press in April, 2015. I also wrote the “Patient Portals: Enabling Participatory Medicine” chapter of The Journey Never Ends: Technology’s Role in Helping Perfect Health Care Outcomes , published in February 2016.
I was the principal editor of the book Engage! Transforming Healthcare through Digital Patient Engagement, published by HIMSS in March, 2013. Engage! was the best-selling book for National HIMSS in 2013 and received the “Best Book” award at HIMSS14. You can purchase the book at CRC Press here.
Praise for Participatory Healthcare:
“In 2030, we’ll look back at this book as the first to document the most compelling change ever to occur in healthcare. Participatory Healthcare combines the facts, figures, trends and market forces driving person-centered health with the heart and soul of the patients who are leading this movement. I’ve made it required reading for all at WEGO Health, and it’s a must for every stakeholder in healthcare.” – Jack Barrette, CEO, WEGO Health
“This book contains the keys to transforming our healthcare system from one in which patients are receivers of care to one in which they are collaborators in care.” – Dr. Paul Kleeberg
“Participatory Healthcare could become the defining textbook of our field – the new cornerstone of our movement. Ten years ago “Doc Tom” Ferguson was working on our founding document, the “e-Patient White Paper” e-Patients: How they can help heal healthcare, when he died unexpectedly. His followers finished and published it in 2007, then formed our Society and Journal in 2009. For years since then I, for one, have felt the White Paper needed to be updated with a broader body of anecdotes and – perhaps more important – with a conceptual framework around which we and all of medicine could organize our thoughts and advance our movement. This is that book… This book is a fitting continuation of Tom Ferguson’s legacy: by reframing the discussion around the role of patients in healthcare, it makes the case for a world-changing paradigm shift in our approach to patient care. Participatory Healthcare provides exactly what we need: conceptual essays and pragmatic stories that demand to be heard. I very much hope you’ll read it, from cover to cover.” – – Dave deBronkart, @epatientdave